WHAT I WISH PEOPLE KNEW ABOUT CEREBRAL PALSY | My Disability

WHAT I WISH PEOPLE KNEW ABOUT CEREBRAL PALSY | My Disability


First one, who uses a thumb to do number one? Anyway (Music) Hey guys, it’s Bethany, welcome back. I’ve talked a lot about things I wish people
knew about disabilities. I mean, welcome to my channel if you’re
new because that is what this is. But I’ve not really talked about my condition. Like, I’ve obviously mentioned it, I have
Cerebral Palsy for those who don’t know. There are certain things about Cerebral Palsy
that I wish people knew. So I figured, why not do a video about it. First one, who uses a thumb to do number one? Anyway, first one is kind of what my condition
is. I don’t necessarily mean people should know
the science behind my condition. People just get confused with Cerebral Palsy,
like when they see a girl in a wheelchair, they expect to hear the words, Muscular Dystrophy
or paraplegic or quadriplegic or something like that. But when you say, Cerebral Palsy, they kind
of just look at you weird. So then you have to go, “Oh I was born”
and then go into that and they still just look at you weirdly. So I guess the first thing is just that Cerebral
Palsy is a disability you get from birth or a believe 24 hours after birth or something. And it’s usually a brain injury. Actually, it’s always a brain injury. It’s a brain injury you get within that
time frame. That’s all it is. which brings me onto my next one which is
very similar. Cerebral palsy is very, very broad, because
the entire diagnosis is, born, brain injury, physical symptoms, brain injury is not getting
worse. And so, that can literally look like anything. For me, it affects my whole body in different
ways. And if y’all want a video on how it affects
me head to toe let me know, cause I would be interested to film that. Anyway, comment that down below if you want
that. But Cerebral Palsy can look like me, where
the legs look like the main thing that is affects. Or it can just be like, I knew a guy once
who had Cerebral Palsy and you could not tell at all. And I’m really good at telling if people
have Cerebral Palsy but you couldn’t tell at all with him. And so, we were talking about it and I asked. He has a bit of muscle pain in his shoulder. That’s all, he just has some muscle pain
in his shoulder. Some people can’t eat, some of them struggle
to swallow food. Although, that’s me, although they have
feeding tubes, which I don’t. But, my point is, it’s so broad an on top
of that, there are four different types of Cerebral Palsy. And I won’t go all into that, but just because
you know someone with Cerebral Palsy, even if that person with Cerebral Palsy has affected
legs like I do and is in a wheelchair, that doesn’t mean anything. That doesn’t mean the fact that he’s on
this medication, or the fact that they are on this, or do this, and have this, that doesn’t
mean it’s gonna work for me. And that’s okay. But we have different needs, different requirements,
different levels. And that is why you can’t really judge someone
who has Cerebral Palsy off just their looks because it’s so much more complicated than
that, The next thing is that intellectual disabilities
and Cerebral Palsy, for the most part, are completely separate disabilities. And so, probably like 99% of the time, if
you see someone with Cerebral Palsy, their brains work fine. They are as intelligent as the next person. I understand it’s confusing because, I said
it’s a brain injury but they work fine, it’s fine our brains are pretty good. The next thing is, it is an extremely, extremely,
common disability. I believe one in 500 babies are born with
Cerebral Palsy. I believe that’s what it said but don’t
100% quote me on that. However, there’s not all that much research
on it, and that kind of really confuses people. Cause they think there is and they’re like,
“Oh you should just enter this thing, and do this thing, and just talk to more doctors.“ I have some of the greatest doctors in the
country and they don’t know how to help me on a lot of my disability because it’s
not the same as the last person and because there’s not all that much research. Because you can’t do research on something
that is so broad. Yes, our symptoms may overlap and yes there’s
a lot of research about how to combat said overlapping symptoms. But once you’ve done those things people
kind of get stuck and they get lost. Even my parents were really shocked to find
this out because yeah it is so common. Like, there’s just not that much research
on it and I’d love to be like, “I’ll just try this new thing.“ But it’s very hard and so we, as individuals
with Cerebral Palsy have worked out, what works and we’ll then stick to that. And if it stops working, we’ll probably
go back to a previous thing, I’ve done that a hundred times. And eventually, yeah, there’ll be more medical
testing and there’ll be more this and more that, and more research. But for right now, there isn’t that many. But we know what we’re doing for the most
part. So, unless you are a medical professional
please don’t be like, “well you should just try this thing.” And then, number five, which will probably
always be my disability first, most important is that we’re human. And I know that sounds obvious but a lot of
people like to treat us as if we’re pets. And I think this is all disabled people I’ll
be honest, it’s not just Cerebral Palsy. But they do like I’ll go somewhere and I’ll
get stroked and pet, like I am a dog. Please. Don’t. Do. That. Kay? Nobody likes that. Who in their right mind sits there and is
like, “you know what I feel like right now? A person, probably a stranger to just pat
me on the arm. What? So yeah, please don’t do that. That was really aggressive when I said that. I’m sorry but it just keeps happening in my
life. Anyway, I rambled a lot in this video because
I just did, I don’t know. But I hope you enjoyed it. It’s kind of- the rambling thing is kind
of what it’s like to talk to me as a human in general so you’re welcome. It’s what it’s like to know me. But, if you liked this video, please like
and subscribe and hit that notification bell. If you wanna hang out between uploads my Instagram
and twitter are linked down below. See you for the next video, bye!

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